Category Archives: Down’s Syndrome Association

March 18

I am Experiencing My Pulse Every Moment – Kindling Hope ♣ & Happiness Around ♥

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“Hands Raised to Serve are More Blissful then Hands Raised to Pray”.

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November 26

Nearly the end

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Well, with under 3 weeks to go I’m starting to feel a little sad. Last week I completed my task of identifying researchers to form a Medical Advisory Group and presented it to people in DSI and the DSA. Everyone was very happy with the culmination of my effort and I’m now busy transferring information […]

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October 08

Autumn in the UK

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Sorry, it’s been a while since my last blog post (multiple people have been reminding me, oops!). My only defence is, I’ve been distracted by meeting the other people in DSi. I did promise you pictures, so this is Normansfield in Teddington. As well as being a combination of private apartments and the UK headquarters of […]

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July 28

I never thought I’d be bothered by the use of an apostrophe.

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The scientific community has always had a problem standardising terms. From multiple aliases for proteins, to the spelling of sulphur (personal note: I will never spell sulphur with an f!). Historically the naming of Down syndrome was a contentious issue. In 1965, when the World Health Organisation was trying to come to an agreement on […]

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July 11

If you need me I’ll be under a big pile of scientific papers.

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So, I’m a month in and I’ve only just worked up to writing my first blog. Writing does not come naturally to me, so I knew the journaling and blogging aspects of a PULSE assignment were going to be tough. People say everyone has a novel in them… well that’s all very well, but mine […]

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Nearly the end of the road

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It’s been a while since I posted on my Pulse Blog. Sadly this may be the last post. I have exactly 2 weeks left at my Down’s Syndrome Association (DSA) assignment. 2 weeks ago I attended a Kick off meeting for a European Project that the DSA are involved with, in Oslo Norway. The 3 […]

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Tell it Right, Start it Right

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Almost half way through my assignment now. Had a lovely 7 day break with my two daughters in Crete so it was good to come back with energy to continue with the communication plan. Before I did go on holiday I had a one months progress review with my Pulse supervisor at the Down Syndrome […]

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August 07

The Third Sector and Strategic Planning

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So what is this picture? Well I feel bad that I can’t share with you amazing pictures from a developing country. This is the fan that sits on my desk at the National Offices of the Down’s Syndrome Association in Teddington UK. It has kept me cool and functional for the past 3 weeks. I […]

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July 23

Another Post

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It will be a month exactly tomorrow since I started with the Down’s Syndrome Association. Today I wrote an article for their Blog! This actually wasn’t a part of my assignment. However when I got here I did say to the team to consider me as an extra pair of hands for 6 months and […]

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July 16

I may as well be in Africa

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It was 32 degrees celcius as I walked home from work yesterday, and was I in the heart of Africa. NO!!! I was in Teddington, National offices of Down’s Syndrome Association and I JUST had to have an iced Frappacinno after my long walk!!! The office was sooo hot yesterday, fans were not effective. I […]

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July 10

Did you know….

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So how much do you know about Down’s syndrome (DS)? I know a lot more now than I did 3 weeks ago which is when I started my Pulse assignment at the Down’s syndrome Association. Everyone with DS will have some degree of learning disability. Certain physical characteristics are common in people with DS as […]

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July 01

Week 2: The learning curve

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Wow..it’s amazing how much you can learn in a week. It’s my second week here at the Down’s Syndrome Association (DSA). I have learnt an incredible amount about Charity organisations and how they work in general but specifically about all the great support the DSA provides to children/adults with Down Syndrome as well as the […]

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June 23

Like my first day at school…

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Hi all I start my assignment tommorrow at the UK Down Syndrome Association. Suprisingly, I feel more anxious that I thought I would. I don’t really know what to expect and if I will fit in with the team. I hope they don’t view me as “the new bod from that corporate company”. It’s key […]

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June 11

Time for Change….

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Hi all . Welcome to my Pulse Bolg!!! My desire to become a Pulse Volunteer started a couple of years back when I spoke to people who had been through the journey and described what an incredible experience it had been. When I worked for “Crisis” last year, the UK charity organisation for the homeless, […]

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